It seems that nowadays everyone is hooked on this "blogging" thing. I'm not a great writer, I'm not terribly witty, and I'm not terribly consistent, but I figure that my life is probably a lot like other peoples, so why not put it all out there?
I am married with three beautiful kids: 6, 2 and 1. The baby was born with Hirschsprung's Disease. You can learn more about it here. We've been very lucky so far with his recovery and his prognosis looks really good. I'm always searching for groups that might have information about how to cope with the challenges that this disease presents.
Family life is crazy around here with the two little ones at home all day with me while I'm trying to work, and it's summer vacation now so my 6 year old will be pestering us all too. I'll spend the summer toting everyone around to dance class, swimming lessons and soccer while trying to make sure everyone stays fed, clean and napped. Hopefully we'll have enough of those "moments" that are worthy to write about now and again that will amuse someone other than me!
Friday, June 13, 2008
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2 comments:
OK, here's my question. I was under the impression that the surgery Alasdair had was the end of it. I wasn't aware that you were still dealing with things. What are the other issues you guys are dealing with?
Unfortunately, Hirschsprung's is a lifelong deal. Right now he is doing really stellar. We have been lucky to have no problems post surgery, but I constantly have to make sure he gets enough fiber and liquid to keep him from getting constipated. Our biggest threat right now is enterocolitis, a bacterial infection of the colon. So if he gets constipated and we can't get it under control, he's at risk for this. So far, so good. He also has poor weight gain (only 19 pounds at 13+ months old) and when we start to potty train, he could have issues with bowel control and not being able to feel when he has to go, therefore leading to accidents or leakage, and like many other normal kids CONSTIPATION. This could cause problems at school, etc.
Plus, it's a genetic disease, so he will have to deal with this when the day comes that he decides to have kids. He has an increaded chance of his kids having this disease too.
Basically my life consists of Fiber, Protein, Calories and POOP. :)
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